Experience of sleep disruption in primary Sjögren’s syndrome: A focus group study

Katie L Hackett, Vincent Deary, Katherine Ho Deane, Julia L Newton, Wan-fai Ng, Tim Rapley

Research output: Contribution to journalArticlepeer-review

7 Citations (Scopus)
2 Downloads (Pure)


Introduction - Primary Sjögren’s syndrome is the third most common systemic autoimmune rheumatic disease, following rheumatoid arthritis and systemic lupus erythematosus, and results in dryness, fatigue, discomfort and sleep disturbances. Sleep is relatively unexplored in primary Sjögren’s syndrome. We investigated the experiences of sleep disturbances from the viewpoint of primary Sjögren’s syndrome patients and their partners and explored the acceptability of cognitive behavioural therapy for insomnia.

Method - We used focus groups to collect qualitative data from 10 patients with primary Sjögren’s syndrome and three partners of patients. The data were recorded, transcribed verbatim and analysed using thematic analysis.

Results - Five themes emerged from the data: (a) Experience of sleep disturbances; (b) variation and inconsistency in sleep disturbances; (c) the domino effect of primary Sjögren’s syndrome symptoms; (d) strategies to manage sleep; (e) acceptability of evidence-based techniques. Sleep disturbances were problematic for all patients, but specific disturbances varied between participants. These included prolonged sleep onset time and frequent night awakenings and were aggravated by pain and discomfort. Patients deployed a range of strategies to try and self-manage. Cognitive behavioural therapy for insomnia was seen as an acceptable intervention, as long as a rationale for its use is given and it is tailored for primary Sjögren’s syndrome.

Conclusion - Primary Sjögren’s syndrome patients described a range of sleep disturbances. Applying tailored, evidence-based sleep therapy interventions may improve sleep, severity of other primary Sjögren’s syndrome symptoms and functional ability.
Original languageEnglish
Pages (from-to)218-226
JournalBritish Journal of Occupational Therapy
Issue number4
Early online date11 Jan 2018
Publication statusPublished - 1 Apr 2018


Dive into the research topics of 'Experience of sleep disruption in primary Sjögren’s syndrome: A focus group study'. Together they form a unique fingerprint.

Cite this